Mr. Graves says
2014-01-21T19:44:45.000Z
good news on the Mockie front. We went to the cardiologist yesterday who did a fresh round of imaging.
latest #28
Mr. Graves
2014-01-21T19:45:51.000Z
apparently her previous diagnosis of having a bi-cuspid aortic valve was wrong and her valve is fully/properly formed
Mr. Graves
2014-01-21T19:46:08.000Z
this means that Open Heart surgery is no longer something we have to worry about.
Mr. Graves
2014-01-21T19:46:51.000Z
It was especially concerning because that kind of surgery would require her to go under, which is a big risk with POTS, as it means she has low BP and blood volume to start
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Mr. Graves
2014-01-21T19:47:01.000Z
so, she would risk going into coma and never coming back
Mr. Graves
2014-01-21T19:47:29.000Z
it also means that she can now do exercises, physical therapy, and her lifting limitation is no longer an issue.
Ser Pounce
2014-01-21T19:50:11.000Z
(woot) that´s some awesome news
Mr. Graves
2014-01-21T19:50:53.000Z
very much :-)
Mr. Graves
2014-01-21T19:51:21.000Z
exercising your core is one of the best-known ways of delaying the effects of POTS
Mr. Graves
2014-01-21T19:51:30.000Z
and she was previously told she couldn't do that
Mr. Graves
2014-01-21T19:51:35.000Z
so this is pretty big news :-D
[Codie ~]#
2014-01-21T19:52:12.000Z
yay that's great news!!
Mr. Graves
2014-01-21T19:52:16.000Z
also, her previously diagnosed "mild to moderate" aortic unsufficiency only showed trace signs, so that means that things aren't as advanced as we thought
Mr. Graves
2014-01-21T19:52:32.000Z
it was a good weather day and her meds were working
[Codie ~]#
2014-01-21T19:52:46.000Z
give her kisses for me plz
Mr. Graves will
2014-01-21T19:52:51.000Z
do :-)
Sean Gorham
2014-01-21T19:55:46.000Z
Great news! Take it from me, open heart surgery is no fun.
Mr. Graves
2014-01-21T19:57:38.000Z
yeah, scary stuff. hope you're recovery is going well.
Mr. Graves
2014-01-21T19:57:45.000Z
your*
Sean Gorham
2014-01-21T20:00:04.000Z
Yup, it's going great! I started cardiac rehab yesterday. :-D (gym) (muscle)
NeedleNerd
2014-01-21T20:05:55.000Z
Glad to hear it's not as dire as you guys were led to believe!
Mr. Graves
2014-01-21T20:06:56.000Z
great to hear, sean! Thanks for the support, all
Herzog
2014-01-21T21:24:39.000Z
Good news Tracer
Circle says
2014-01-21T22:34:08.000Z
So glad to hear this Tracer
Coyote Laughs
2014-01-22T01:37:21.000Z
that's EXCELLENT news!
Ame says
2014-01-22T07:42:14.000Z
That's fantastic news, so happy for you both!
Mr. Graves
2014-01-22T17:53:12.000Z
also, sorry to hear that, Sian.
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